Canadian Autistic Adult Needs Assessment

On March 28th, 2023, the Government of Canada passed Bill S-203, which legislates the development of a national autism strategy to help and support all Autistics and their caregivers. At the same time, a government commissioned report reported significant gaps in information about Autistic adults.

To fill some of these gaps, Autism Alliance of Canada, partnering with McMaster University, conducted a survey of Autistic Adults (age 30 years and older) across Canada. This survey was being funded by the Public Health Agency of Canada and will be used to inform a National Autism Strategy. 

This is a survey by Autistics for Autistics. The survey was led by our postdoctoral Health System Impact Fellow, Dr. Mackenzie Salt. Dr. Salt is an Autistic self-advocate and autism researcher. He worked with and consulted with lived experience partners of various ages and abilities, in developing the survey. This is also a chance for Autistic adults to inform policy being made to support them and have their experiences and perspectives heard by the federal government.

We invite you to click on the button below to read the report, published on April 2, 2024, “Fostering Inclusion: Exploring the Needs of Autistic Adults in Canada,” to learn how we can better support the health and wellbeing of Autistic adults in this country.

The second phase of the project, funded by the Sinneave Family Foundation, is currently underway. The second phase will involve focus groups with Autistic adults to prioritize themes and respond to the survey data.

This project couldn’t come at a better time. There’s very little information out there on Autistic adults and what they go through. This is an opportunity to try and fill some of those gaps, inform policymakers, and let the Autistic community have a say in policy that will be affecting them.

Dr. Mackenzie Salt
Autistic self-advocate, lead project investigator, CIHR Health System Impact Fellow

Logos of partner organizations

Resources and Outputs

Fostering Inclusion: Exploring the needs of Autistic Adults in Canada An Autistic-led survey Report now available

Fostering Inclusion: Exploring the Needs of Autistic Adults in Canada – An Autistic-led Survey

Most autism research focuses on children, leaving big gaps in understanding Autistic adults. We need to know more about their lives, how they experience quality of life, independence, daily activities, and feelings of loneliness, mood, and mental health. Findings from this survey will be used to inform a National Autism Strategy and bring value to policymakers, community leaders, researchers, and advocates.