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Research

Autism Data Collaborative

Autism Data Collaborative

The Autism Data Collaborative consists of individuals with personal experience, researchers, healthcare providers, policymakers, and community leaders from all over Canada. Together, they aim to utilize and create Canadian health, social, and education data to influence improved policies and enhance systems, ultimately making the lives of Autistic people in Canada and their families better.

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Developing Shared Measurement Across Community Organizations: Data Across Indigenous Communities

Part of: Autism Data Collaborative

This project gathers stories from two First Nation communities their experience with autism. The goal is to meaningfully engage with the community, creating supportive environments, and considering the unique strengths and challenges of Autistic people. By understanding their needs, we can enhance their sense of belonging, well-being, and increase their involvement in research.

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Developing Shared Measurement Across Community Organizations: Sharing Space, Stories & Insight

Part of: Autism Data Collaborative

This pilot project has the goal of creating a databank for information about housing for Autistic adults across Canada. Housing is an important issue for the community and this information can help policy makers understand the needs of Autistic people and create better policies that can support them in finding suitable housing options.

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Leveraging Administrative Data in Manitoba to Inform Autism Policy

Part of: Autism Data Collaborative

This project will use administrative data in Manitoba to investigate the health, social and educational needs of autistic people living in Manitoba. We will also investigate gaps and strengths of administrative data in conducting this type of research involving autistic people and build relationships with researchers and clinicians working in this area in Manitoba.

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Autism Knowledge Synthesis Initiative

The Autism Knowledge Synthesis Initiative is a partnership with the Strategy for Patient Oriented Research Evidence Alliance. It brings together researchers, autistic persons, care givers, healthcare providers, and policymakers to work on research projects that summarize the best available research on priority topics to the autism community. They work together to gather and use the best available evidence to improve the health and well-being of Canadians.

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Scoping Review of National Autism Strategies

This scoping review analyzes autism policies in countries that agreed to the United Nations Convention on the Rights of Persons with Disabilities. The goal is to find out what these policies are and use the information to help create international policy recommendations through Autism Alliance of Canada's International Autism Policy Initiative.

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Autism Data Asset Mapping Project

This project is an environmental scan of Canadian databases used for autism research that can inform policy and practice. This resource summarizes databases that can be used by researchers, trainees and policy makers and inform autistic persons and their loved ones of information sources that can help in their advocacy efforts.

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Canadian Autistic Adult Needs Assessment

Autism Alliance of Canada, partnering with McMaster University, is conducting a survey of Autistic adults (age 30 years and older) across Canada to better understand their needs. This information will be used to inform rights-based autism policy that prioritizes the lived-experience of Autistic adults.

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