In October 2021, Autism Alliance of Canada launched the Autism Data Collaborative (ADC) with the support of The Azrieli Foundation. The ADC is a diverse group of members from across Canada, united to enhance the use of data to inform autism policy.
Our aim is to develop pan-Canadian research projects that address community priorities.
In February 2022, we established four working groups composed of Autistic self-advocates, family members, service providers, community organizations, researchers, and policymakers. These groups focused on highlighting priority areas for the Autistic and autism communities.
In June 2022, the 2022-2024 Autism Alliance of Canada Data-to-Policy Fellowship began, supported by Kids Brain Health Network, the Sinneave Family Foundation, and Autism Speaks Canada. This fellowship welcomed senior research trainees to help implement national projects aligned with insight and priorities identified by the ADC working group.
In June 2023, we hosted the Autism Data Collaborative Engagement Event to gather feedback on Data-to-Policy Fellowship projects. This event was supported by a CIHR Planning & Dissemination grant. We are proud to have been able to financially acknowledge the valuable time and insights of attendees with lived experience.
Did you know that the Alliance releases quarterly newsletters with updates from the Autism Data Collaborative? See below for our most recent and previous newsletters, and sign up for the ADC if you want to receive them!
We invite you to explore the ongoing ADC projects below.