The Autism Data Collaborative consists of individuals with personal experience, researchers, healthcare providers, policymakers, and community leaders from all over Canada. Together, they aim to utilize and create Canadian health, social, and education data to influence improved policies and enhance systems, ultimately making the lives of Autistic people in Canada and their families better.
Read more
Part of: Autism Data Collaborative
The National Autism Waitlist Initiative aims to make it easier to get data about how long people have to wait for autism assessments and diagnoses in Canada. This information will help make the system better and get more support from the government to shorten wait times for autism evaluations.
Read morePart of: Autism Data Collaborative
The aim of this project is to enhance the participation of Autistic people in research and policymaking. This will be achieved through the formation of a National Lived Experience Advisory Group, which will center the perspectives of Autistic people and guide the Alliance based on community-identified needs.
Read morePart of: Autism Data Collaborative
This project gathers stories from two First Nation communities their experience with autism. The goal is to meaningfully engage with the community, creating supportive environments, and considering the unique strengths and challenges of Autistic people. By understanding their needs, we can enhance their sense of belonging, well-being, and increase their involvement in research.
Read morePart of: Autism Data Collaborative
This pilot project has the goal of creating a databank for information about housing for Autistic adults across Canada. Housing is an important issue for the community and this information can help policy makers understand the needs of Autistic people and create better policies that can support them in finding suitable housing options.
Read morePart of: Autism Data Collaborative
This project will use administrative data in Manitoba to investigate the health, social and educational needs of autistic people living in Manitoba. We will also investigate gaps and strengths of administrative data in conducting this type of research involving autistic people and build relationships with researchers and clinicians working in this area in Manitoba.
Read moreThis scoping review analyzes autism policies in countries that agreed to the United Nations Convention on the Rights of Persons with Disabilities. The goal is to find out what these policies are and use the information to help create international policy recommendations through Autism Alliance of Canada's International Autism Policy Initiative.
Read more
This project is composed of community members and researchers who work as a team to understand the difficulties faced by Autistic people who speak minority languages. The findings will help decision-makers improve healthcare access and fairness for both majority and minority-language speakers all over Canada.
Read more
Autism Alliance of Canada helped drive momentum towards Canada's national autism strategy from the very beginning. Our track record has established us as a reliable organization that brings together governments, the research community, and the broader disability community to develop a more responsive approach to autism policy in Canada.
Read more
The Policy Compendium is a collection of policy briefs developed by Autism Alliance of Canada-Kids Brain Health Network Policy Development Working Groups to support the federal government in taking steps towards the development of a National Autism Strategy.
Read more